California girl battles rare disease; dad to donate kidney

Billie Ladig's father will go under the knife to give his daughter a life-saving kidney. (KMPH)

VISALIA, Calif. (KMPH) -- Billie Ladig is like most 9-year-olds.

She's obsessed with puppies and swimming pools.

Her parents go out of their way to make every day count – and with good reason.

Billie spent nearly a month in the hospital when she was 2 years old.

It took doctors 29 days to diagnose her with what's known as Faconi Syndome.

It's a rare condition that affects how her kidneys function, but it takes a toll on other organs too.

"Her vision's gone bad. Her hearing. Her growth. But the kidney is the main thing right now," says Billy Ladig, Billie’s father.

Billie depends on a feeding tube and at least 14 medicines.

Her mother quit her job to take care of her.

"There's a lot of small things it affects, which to a 9-year-old is big. She don't get to run, she can't play,” says Robyn Ladig, Billie’s mother. “She can't climb, her body don't have the muscular tone a normal 9-year-old kid does."

Doctors at Lucille Packard Children's Hospital at Stanford have said Billie's only hope of living longer is getting a transplant.

Her father is an ideal candidate.

Problem is, he's the family's only breadwinner.

The procedure will keep him from working as long as six weeks.

Billie could be there as long as six months.

For the family, it's a sacrifice worth making in hopes a child will have a healthier future.

Some friends have allowed the Ladig’s to borrow an RV for the stay at Stanford.

Others have set up a GoFundMe account to help the family with expenses including food and gas.

You can help by clicking here.

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